Join the registry (doctors or health care providers)
If you are interested to join the registry and enter de-identified data of your patient in the registry, please follow the next four steps:
1. Parents or legal representatives of the patient should first complete the online registration form
2. Parents/legal representatives receive an unique patient code and hand over this unique code to you as a doctor
3. Register online as a doctor with this unique code
4. Fill in the doctors questionnaire
Detailed information on the registry can be found in the information leaflet.
Should you have any questions, don`t hesitate to contact us at firstname.lastname@example.org
If you decide to join the registry, please complete the online registration form. Please note, if you would like to sign up more than 1 patient, please complete the registration procedure again for each individual patient.